This role is responsible for sourcing, completing and recording funding applications to grant making trusts using and adapting existing templates according to funder priorities. We need help to give hope and support to people affected by leukodystrophy – could you be that help?
When: Any day
Commitment: 4 hours a week
Where: SE15 5EB or home based
About Alex, The Leukodystrophy Charity (Alex TLC)
Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Leukodystrophies are rare, genetic disorders primarily affecting the white matter of the central nervous system (i.e. the brain or spinal cord). The majority of leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In some cases, they may cause death.
Like many other small charities, we have grown organically from an informal support group to the recognised voice for adrenoleukodystrophy patients and their families. Our charitable work is supported by voluntary donations, grants and profits from our chain of five charity shops across south east London.
Purpose of role:
With scant resources we are unable to employ dedicated fundraising staff and are looking to the voluntary sector for assistance. Although existing staff manage grant applications as best they can, we have identified this area as a key weakness as well as critical for continued growth and success.
We are looking for volunteers, preferably with experience of grant fundraising, to:
research potential grant making trusts for relevance to our specific objectives
send applications using existing templates
update our systems with details of applications
We are looking for:
- an interest in ALD Life and the work that we do
- basic understanding of the complexities of ALD
- excellent written skills
- excellent computer skills, particularly Microsoft Word and Excel
- excellent organisational and administrative skills
This is a wonderful opportunity to:
- acquire new skills
- update your CV
- improve your self confidence
- meet new people
- help to make a real difference for those affected by leukodystrophy
We will provide:
- full induction
- comprehensive training
- travel and lunch expenses
Find out more/ get involved!
Natasha Frost, Retail Area Manager, firstname.lastname@example.org, 020 7701 4388
Sara Hunt, Chief Executive Officer, email@example.com, 020 7701 4388